I’m happy to say I survived another Valentine’s Day, neurotically avoiding all candies offered to me. This has proven to be an even larger challenge than last year, due to my new job. In December, I started to volunteer at the Community Assistance Center, working the resource center front desk and distributing mail for our [...]
Today is the last day of August, Stevens-Johnson Syndrome Awareness Month. In February of 2009, I was diagnosed with Stevens-Johnson Syndrome. SJS is a life-threatening immune-complex hypersensitivity disorder affecting the skin and mucous membranes in which cell death causes the epidermis to separate from the dermis. Yikes! Feb 18 2009 – starting to recover after [...]
Even with all the sadness in the world, my heart is happy. I love, and I’m loved, and I love our yearly celebration of love every year known as Valentine’s Day. I think it might be Annabel’s #2 favorite holiday (behind giftmas, of course) and I’m not going to let what happened last year cloud [...]
Ocular problems are very common with Stevens-Johnson Syndrome, but I didn’t have any when I was hospitalized. My eyes started to hurt something awful while I was trying to read something yesterday, and I just totally lost myself in worry and what-ifs. What-if I go blind? What-if one day, I can’t read any more? What-if [...]
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